Gracie Lou's Crew

Team Captain: Angie & Michael Tusa

In March 2019, we were surprised to find out that we were pregnant! We went for our first doctors appointment in April and were so excited after seeing Baby Tusa busy moving around during the ultrasound. We then visited with our doctor when they shared they found a possible concern during the ultrasound, which could possibly mean the baby could have down syndrome or Trisomy 18. 

We shared with our families at Easter time that we were "eggspecting!" 

After some thought, we decided to go through with a blood test that would determine the diagnosis. About a week later we got the heartbreaking phone call that Baby Tusa more then likely had Trisomy 18, but it was still not a definite.  It was then suggested that we have an amniocentesis done at Children's and meet with a genetic counselor. On Mother's Day we decided to open the envelope to find out that....we were having a GIRL! We shared with our boys that we would be expecting another baby, but this baby was really sick. 

After completing the amniocentesis, we were back to the waiting game. During this time we had become hopeful and felt that no news must mean good news! We were again heartbroken when the phone call confirming that Baby Girl Tusa would have Full Trisomy 18 in every chromosome and that the hole in her heart would be a concern. 

During this time I knew that we needed to embrace the time we would have with Gracelyn Louise and create "happy" memories with the boys. 

On Friday, September 27th, 2019 our Gracelyn Louise Tusa was born at 1:52pm, 15" long and 3lbs 2oz. We were able to snuggle with her in the delivery room.

We then were brought back to a room where we were soon able to have our boys and families join us. She occasionally would try to peek out of one eye and was such a peanut snuggling in with those there to love on her!! They knew it may be just time as her heart rate was low. At one point they came to check vitals and then requested for a pediatrician to come in. She peacefully passed away in my arms.

Prior to delivery we were introduced to IRIS, they were there to chat before and then after the loss of our sweet Gracie Lou. Our experience with IRIS has been incredible. Diana met with Michael and I to create and capture photos and share the generosity from others as well. Her time and dedication to capturing Gracie Lou's short time with us, certainly didn't go unnoticed. We are forever grateful for IRIS and all those that provided love and support to our family during this difficult time. When our former daycare provider, Jocelyn suggested creating a team for the Turkey Trot...we figured that was our sign and a great way to give back!

Gracelyn has been gone for two years now and the Turkey Trot is one way we continue to feel close to her. She was so very loved and is so very missed! 

Team Members:

Angie Tusa
Michael Tusa
Mason Tusa
Henry Tusa
Jessa DeRusha
Matt DeRusha
Cole DeRusha
Eli DeRusha
Rylie DeRusha
Timothy Schwab
Alanna Shirley Shirley
James Schwab
Linda Schwab
Christine Schwab
Kim Tusa
Teresa Vik
Natalia Vik
Fiona Vik
Dave Tusa
Verdetta Tusa


Total Raised: $906.00
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